This case study has been based on an Inspector's real experiences in 2005. Names and details have been changed to protect the identities of real people and services.
Miss Teal was admitted into the specialist dementia unit of a seventy bedded care home. Before being admitted to the care home Miss Teal had been in hospital, following a car accident. She had caused a serious accident after driving her car inappropriately. Following a period of assessment and rehabilitation she is diagnosed with dementia and to support her future care needs she is admitted to a specialist dementia unit.
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While inspecting in the specialist unit for people with dementia, which is locked, I observe Miss Teal, a well dressed healthy looking lady, leaving on four occasions through alarmed fire escapes. The first three times she is escorted back despite her firm protests that she did not wish to return. The fourth time she becomes very distressed and shouts for help, that she is being held against her will, she becomes aggressive and tells them she'll call the police. Staff respond by giving "as required" sedation. Miss Teal sleeps and misses morning coffee and lunch.
I check care plans and daily notes. It is clear that Miss Teal regularly leaves the unit via fire doors and often becomes distressed, crying and shouting out when escorted back. I check "as required" sedation which is regularly used each day. I ask staff about her care needs and I am shocked at what they say...
"She nearly killed someone you know. She's completely demented. Take her for a walk!? No point, she'd forget within five minutes and want to go again, her memory is like a goldfish's you know."
She's looking frailer now, her clothes are crushed and hair is lank. She's sitting dozing in a chair. I chat with her and she engages, she was a piano teacher and she loves classical music (Radio 1 is playing in the background). She used to walk every day, enjoy lunch out, and she doesn't like this hotel. The food is poor, service terrible and there's nothing to do. She's going to leave and find a better hotel when she can find the energy.
I check care plans and daily notes. They do not reflect any of what she has told me. She is reported as "settled", "slept well" ... she's fitting in with the unit's routine.
I check "as required" sedation. It's now used around two times a week when she tries to leave and gets distressed. I ask staff about her care needs and I am shocked at what they say...
"She nearly killed someone you know. She's completely demented. Take her to play the grand piano in the other unit? No, she needs to be in this specialist dementia care unit, she can't go out you know."
I don't recognise her. She is slumped in a chair. She has significant weight loss. She has a black eye. I sit beside her and touch her hand. She opens her eyes and looks through me. I smile and ask her how she is. Her teeth fall forward as she tries to reply. I check care plans and daily notes. They note her weight loss, (encourage fluids and good diet), her continence difficulties (ensure pads applied), and her falls (she needs help of one person to walk).
I check "as required" sedation which is now rarely used. I ask staff about her care needs and I am shocked at what they say...
"She nearly killed someone you know. She's completely demented. Can she move to the other unit? Well, she's really settled here now you know."
Miss Teal died eighteen months after admission. Unfortunately Miss Teal's experience is not isolated. In 2009 the Care Commission and Mental Welfare Commission (CC/MWC 2009) undertook a joint review of homes which highlighted related issues. The report gave ten key messages which included treating people as individuals, ensuring a choice of activities including some within the community, respecting the right to freedom while balancing this with safety and ensuring care staff have appropriate training.
Since the report in 2009 Scotland has launched National Dementia Strategies and Dementia Care Standards requiring significant change and improvement in the care of people with dementia. The 2013 to 2016 strategy builds on the work of the first strategy.
Before considering the questions you might find it useful to look at the most recent national dementia strategy within Introductory resources and the video and key resources section within Supporting health and wellbeing.